R-5, Center for Independent Living Services and
Their Effect on Community Participation:
Comparing the U.S., Japan and South Korea
The Bottom Line
This research project measures the effectiveness of Center for Independent Living (CIL) services for people with disabilities.
In the U.S., CIL staff members were surveyed to identify the top 10 most important services for enhancing community participation among consumers.
The procedures used in the U.S. study were replicated in similar studies conducted in Japan and South Korea. The data from these three countries were then used to conduct a comparative study of CIL services in terms of strengths and weaknesses. In October 2012, Kyung Mee Kim presented this research at the Asian Pacific Network on Independent Living meeting in Incheon, South Korea.
The title of the presentation was "A Comparative Study of the United States, Japan and Korea on CIL Services that Improve Community Participation for People with Disabilities," co-authored by Glen W. White, Craig Ravesloot, Chiaki Gonda Kotani, KyungMee Kim, Shoji Nakanishi, Ahn Ji Hwan, Jeff Gordon and the Consumer Empowered Team.
The U.S. government funds centers for independent living (CILs) to provide four core services for people with disabilities: peer counseling, information and referral, independent living (IL) skills training and advocacy. More recently, de-institutionalization has become a fifth core service.
But there has been little or no empirical evidence that shows how center services affect the community participation of their consumers. This project developed a tool that CILs can use to measure the independent living dimensions of their services.
The tool is a survey that asks CIL staff members to rank the importance of services offered by their organization. (In a second phase of the study, consumers are also surveyed.) With the information provided by this new tool, CILs may choose to enhance their services, modify staff training and tailor programs to help their consumers participate more fully in the community.
Replicating the Research in Asia
In collaboration with disability leaders and researchers in Korea and Japan, we extended the research to both countries. The survey was translated into Korean and Japanese and placed online.
While CIL services and philosophies in the two Asian countries differ in some ways from the U.S. and from each other, the basic elements of the survey applied to all three countries. In the U.S., 420 staff members at 65 CILs took the survey. In Japan, 288 staff at 65 CILs took part, and in Korea, 175 staff from 54 CILs completed the survey.
- All three countries have similar response patterns in general. The following content categories were viewed as less important by all: employment, mental health, assistive technology, health care and recreation.
- While Korea and Japan have emphasized personal assistive services and peer counseling, they also note value in the process dimensions – how the services are delivered – which reflects their core IL philosophy.
- In the top 20 items of importance, Japan and Korea CIL staff agreed on the importance of at least one item in each of the U.S. core service areas.
CIL Staff Ratings of Top 5 Services by Importance
Viewing the Study in a Cultural Context
These findings should be interpreted through a cultural, economic and political lens. The intent of this study is not to determine whether one country offers better CIL services than another, but to examine our commonalities.
For more information, contact Glen White, firstname.lastname@example.org; Craig Ravesloot,email@example.com; or the Research and Training Center on Measurement and Interdependence in Community Living at the RTC/IL, 4089 Dole, 1000 Sunnyside Avenue, Lawrence, KS 66045, 785.864.4095 (voice), 785.864.0706 TTY, RTCIL@ku.edu
National Institute on Disability and Rehabilitation Research grant H133B060018