Research and Training Center on Independent Living Releases 9th Edition of Writing Guidelines
July 26, 2020
The Research and Training Center on Independent Living (RTC/IL), a research center at the Life Span Institute at the University of Kansas, celebrated the 30th Anniversary of the Americans with Disabilities Act (ADA) by releasing the 9th edition of Guidelines: How to Write about People with Disabilities.
Acknowledging that the language we use to discuss disability shapes perceptions of people with disabilities, the Guidelines summarize key concepts in the Disability Community and recommend objective, respectful terminology to use when writing about disability. The recommendations were reviewed and endorsed by national organizations representing people with disabilities.
New to the 9th edition is a discussion of a recent shift in some communities from a preference for person-first language to a preference for identity language. Person-first language literally puts the person first in a sentence, emphasizing their basic humanity before stating an objective fact, as in people with autism. Identity language expresses disability pride with such direct statements as I am autistic.
“Language evolves, and the Guidelines document evolution in disability language, noting terms that are rejected because they are stigmatizing and others that are preferred because they are factual and promote dignity,” says Jean Hall, Director of the RTC/IL.
The first edition of the Guidelines was published in 1984. Since then, RTC/IL has distributed more than a million copies, and recommendations from the Guidelines have been adopted by The Associated Press Stylebook, the Publication Manual of the American Psychological Association, the American Association for the Advancement of Science, and other professional organizations.
RTC/IL Staff Receive Major Awards
February 17, 2020: Two RTC/IL staff members recently received major financial awards. Kelsey Shinnick Goddard, Research Project Coordinator, received the American Association on Health and Disability (AAHD) Frederick J. Krause Scholarship on Health and Disability. Jay Schultz, Graduate Research Assistant, received the Health and Disability Fellowship from the National Association of County and City Health Officials.
Goddard's award recognizes deserving students with a disability who are pursuing studies related to health and disability. She was one of two people to recieve it nationally. The Scholarship on Health and Disabillity honors the life and career of AAHD co-founder Frederick J. Krause.
Schultz's fellowship allows graduate students to gain entry level experience in the public health workforce and to learn about people with disabilities as a public health priority population.
Systematic Review Webinar Scheduled for Oct. 29
All are invited to attend a webinar on "Multifaceted Interventions for Supporting Community Participation Among Adults with Disabilities: A Systematic Review" on Oct. 29 at 2-3 pm Eastern time. Read more.
Jean Hall Publishes Article on Oral Health Needs of Medicaid Enrollees with Serious Mental Illness
RTC Director Jean Hall and colleagues have published "Oral Health Needs and Experiences of Medicaid Enrollees With Serious Mental Illness" in the American Journal of Preventive Medicine (online August 2018). This study investigated the experiences of Kansas Medicaid enrollees with serious mental illness in accessing dental services, examined their oral health risk factors, and identified oral health needs and outcomes.
Jean Hall Publishes Article on Medicaid Expansion
Jean Hall and colleagues published "Medicaid Expansion as an Employment Incentive Program for People With Disabilities" in the American Journal of Public Health (Sept. 2018). U.S. News & World Report featured the study's findings that there is a higher rate of employment among people with disabilities in states where Medicaid has been expanded.
Jean P. Hall Named Center Director
Jean P. Hall, PhD, has been appointed Director of the Research and Training Center on Independent Living. Read more.
New Resource Available for "Making Homes Visitable"
Dot Nary has published a guide that helps wheelchair users and potential hosts find ways to make a visit possible.
Zhang Successfully Defends Dissertation
Congratulations to Dr. E "Alice" Zhang on successfully defending her dissertation on April 18! Read more.
The Research and Training Center on Community Living completed its work in September 2017 - but our resources are still here for you! Watch this video to learn about some of them.
"Stoplights Don't Stop Us!" Video Highlights Community Advocacy Success
Advisor Profile: Phil Rumrill
Phil Rumrill shared his perspectives on Center research during a campus visit. Read story.
Advisor Profile: Stan Holbrook
Stan Holbrook visited the Center to discuss ideas for disseminating its research. Read story.
KU disability researchers edit special journal issue
The RTC/IL's Glen White and Jean Ann Summers co-edited an issue of the Journal of Prevention & Intervention in the Community, and other staff members contributed articles. Read story.
With the help of a trait known as resilience, many people with disabilities who live in rural areas have achieved a good quality of life and are able to participate in their communities. Read story.
Accessible Parking Etiquette: New Brochure Available
The Center's new brochure explains the dos and don'ts of accessible parking.
Bob Dole Makes Gift to RTC/IL
Former U.S. Sen. Bob Dole has made a gift of $10,000 to the University of Kansas Research and Training Center on Independent Living. Read story.
Center Supports Mixed-Ability Dance Workshops
The RTC/IL co-sponsored mixed-ability dance workshops held by AXIS Dance Company on Nov. 9. Read more. The workshops were held in conjunction with the company's performance at KU's Lied Center for the performing arts. Story and photos.
New Grant Supports Community Participation
The RTC/IL has been awarded a five-year, $4.375 million grant from the National Institute on Disability, Independent Living, and Rehabilitation Research to promote community participation for adults with physical disabilities. Read more.
Community Living Summit
At the Community Living Summit, Center partners presented the findings of their research to a gathering of disability advocates, other researchers and policymakers from national organizations. See the presentations.
Center Partners on CDC Health Program
RTC staff are working on a project to improve the health of Kansans with disabilities. Read more.
Alice Zhang Receives Award
Graduate student Alice Zhang received the LSI 2015 Early Stage Graduate Award. Read more.
Advisor Profile: Ron Garcia
Ron Garcia visited the Center to share his perspective as a CIL director. Read more.
Guidelines Now in Spanish
The RTC/IL has produced a Spanish version of its internationally known recommendations for disability terminology. Read more.